Friday, May 13, 2011 11:15 PM, MST

Thank you for continuing to pray for Hannah.  Today was refreshingly better but the few days before this were rough. I haven’t seen her like this in a long time and it brought back memories that I forgot were there. We originally went to urgent care last weekend because of very unusual eye pain. She said it only hurt when she moved them to the right or left but as long as she didn’t close them or move them she was fine (easy right).  The only thing that showed up when I googled that symptom was Graves disease (ha?) and “go see a doctor immediately.” You gotta love Google.  This symptom with her eyes lasted most of the week along with fevers that lasted 6 days. She went from chills to back pain to very severe headaches. Obviously all of this wouldn’t be as much of concern if it wasn’t for her counts being so off.  Because fever as well as headaches and back pain can be signs of relapse it was a very unsettling feeling.  Her doctors would always tell us that headaches that came and went were not as much of a concern but headaches that became persistently worse needed to be reported. 

The night before last night she woke up and said “mom it’s a 10”.  For those of you not familiar with the pain chart, whenever we were in the hospital she was asked to rate her pain.   Hannah ALWAYS minimized it because she HATED the meds and the additional doctor visits and hospital stays that the intense pain ultimately brought. That is why when she called it a “10” I knew it was bad.  I decided it was time for another call to the clinic and they decided they wanted to see her. So Thursday morning, after taking Josiah to school, we went back to the oncology clinic. Needless to say Hannah wasn’t happy with me. For those of you who know Hannah you know that she is ultra sensitive to her environment and even the smells and sounds triggered unpleasant memories for her.  I had to pull out the zofran because between the headache and the smells her nausea became intense. Her doctor rechecked her counts and they were identical to her blood counts from Sunday. They still feel like it’s probably a virus but they had hoped to see a little recovery in her blood counts.

 Unless things get worse they want her to come back next week for another count check. They also said if her fever didn’t go away by the weekend she needed to come back in as well.  So Hannah was absolutely thrilled when the thermometer read “98.6”.  And of course I was thrilled as well.  It was such a long week for all three of us and of course especially for Hannah, but I was so grateful that God has promised that “His compassion is new every morning.” I kept thinking about that verse this morning.  Lamentations 3:22-34 has always been one of my favorite passages in the Bible, obscure I know, but so rich with the truth of God’s character.  Lamentations 3:22-23 kept coming to mind:

 Because of the LORD’s great love we are not consumed,

For His compassions never fail.

They are new every morning; great is your faithfulness.

 

So thankful for the amazing faithfulness of our compassionate God!

 Thank you again for carrying us with your prayers! You will never know what it means to us!

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